Hello my name is Anna and my son has Cerebral Palsy.
1 in 400 children are diagnosed with Cerebral Palsy in the UK*. There are plenty of web sites that will give you all the medical information you need, some of the ones I feel are the better ones are listed on this site. There are very few that goes any way towards helping you through the emotional roller coaster of either living with or being informed that your child has C.P.
When Harry was born we asked to see a counsellor, we had a lot of feelings and needed help to deal with them, and the hospital gave us the number of a bereavement counsellor that was the closest they could get!
Over the years, I most certainly have and believe David (my other half) has, felt very alone. We have both dealt with things in different ways. I know I have, and if I am honest still do have, feelings of guilt, maybe I could have done something to prevent this happening to my child and my family.
Sometimes I just want to talk to someone, who has gone through similar things, I want someone to tell me its ok to feel whatever you feel, I want someone to say I know I felt like that, I got through it like this, or this made it better or I found that.
So here it is CPTalk. It is as you can see very new, but I hope it will grow, I hope it will help. To start it off I have taken out of a drawer on old journal I kept when H was a baby, when I got sad, angry, frustrated or just mad, I would take it out and write, some of it are just ramblings, some of it are facts or information I had been given. Some pages are tear stained one is even just a huge scribble. I am going to use it to write a few articles for this site in the hope that it will prompt others to talk about their worries, fears, and emotions. CPTalk is not going to fix things, but I hope it will help cope with things, help sort things, give some bits of advice and a lot of support.
I am not going to say “I know how you feel”, because I don’t, I only know how I have felt and still feel, if I let you in to our world maybe you will see you are not alone. So here goes…
* Information Source – Scope UK website